Thanks to everyone who made PodConf 2023 an amazing experience!

Katie Wright / Staying Connected

Here’s our interview with Katie Wright, host of the Staying Connected podcast.

Katie was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in 2017, and her challenge getting a diagnosis, combined with a missed life-threatening event by medical professionals, instilled in her a passion to raise awareness for others with VEDS. Since her diagnosis, she launched a YouTube channel dedicated to raising awareness of VEDS, and got involved in a research project called the VEDS Collaborative.

She also launched Staying Connected, a podcast where she talks to others with the condition. In 2019 she joined The Marfan Foundation to start a division of the nonprofit for VEDS, now known as The VEDS Movement. In 2023 she ended her role as the Director of The VEDS Movement to pursue opportunities in research and devote more of her time to her podcast.

Connect with Katie on YouTube, and come meet Katie at PodConf 2023!

Katie Wright / Staying Connected / PodConf

How many episodes have you published?


Describe your podcast in 2 or 3 sentences

It’s an interview-style podcast where I interview other people impacted by VEDS about their stories.

Why did you start this podcast and what do you love about it?

I started this to advocate, raise awareness, and bring people together across the world who have the condition. That is what I love about it most…the way it connects people and information.

Who is your target audience?

Medical professionals, medical students, and people impacted by the rare condition.

What’s the number 1 thing listeners love about your podcast?

The availability of information and connection with others.

Are you monetizing this podcast? If so, how?

I recently started monetizing through Patreon and Blubrry ads

What advice would you give a new podcaster?

Keep going and remember your “why”!

What’s your favorite podcast you listen to?

Welcome to Nightvale

Anything else people should know about you or your podcast?

Where can people follow you?

The best place to follow me is on YouTube.

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